I wake up and go about my day according to how I feel. I’ve been doing this since 2011 and have learned how to adjust my schedule as needed. One of my goals has been to get back to work and continue to help others as a nurse. I’ve been working so hard over the last few years to find the right job that would allow me to use my knowledge, skills and experience. I’m so thankful to have found the right fit. I’m able to do what I love and help patients receive the best care possible in a calm, quiet and supportive environment. I’m blessed to be surrounded by coworkers who are kind, caring and understanding and I strive to have a work life balance that helps me to be successful each day.
I’m happy to share that my health has improved so much in seven years! I reflect back and see where I was, where I am now and have a better understanding of how much healthier I am today. I have to smile when I think back to my doctors visits and how I would always update them that I was feeling better. Little did I know that I would still be working hard to stay healthy and monitoring myself everyday. It is a bit more easier for me now and almost like second nature because I’ve been doing it for so long.
This past year has been eye-opening for me. My health has really changed and I’ve been able to do what I loved to do before getting diagnosed with Sjögren’s syndrome.
Hmmmmmm, what have I been doing so long?
I’ll be honest, I don’t sit down every night and plan my days, months or years. I pretty much go with the flow as best as I can. This helps me to really have less stress, anxiety and time restraints, which allows my body to be pretty relaxed most of the time. I discovered shortly after being diagnosed that stress is the main factor in causing my body to have a flare. Educating myself and learning about how to live healthier has been an ongoing goal for me.
I’m always thinking about what I’m doing, what’s working for me and adjusting as I continue to learn about living with Sjögren’s. The “constants” for me, Monday through Friday are going to work, eating at least three meals a day and sleeping at least seven hours or more if possible each night. Everything else in between (any free time)that might be open for me to do what I love to do, will depend on how I am feeling. As I have become healthier, stronger and more flexible and open to learning, I have been able to increase my daily activities over the last year.
I have been able to get back in the gym after about a two year break. Hooray! It feels so good to be able to move my body and start working towards a healthier and happier me. I’ve added the gym to be a “constant” in my daily schedule and at least two to three times a week. I’m once again adjusting my daily activities to prioritize my “constants” and will be careful about what I schedule during my free time. I know that going to the gym has added a little stress to my body so I need to be sure and rest in between workouts.
The Sjögren’s and Lupus Foundation of Hawaii will be having a support group on August 24, 2018 at MOA Wellness from 5-7pm. Please visit slfhawaii.org for more information.
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START EACH DAY WITH A GRATEFUL HEART!
Please remember everyone’s body is different and unique. Always discuss any areas of concern about your autoimmune disease with your doctor.
Hugs to all…..You can do it!
Don’t be afraid of failure. If you never try, you will never succeed.