The Power of Advocacy: Promoting Participation to Improve Care and Advance Research
Kathleen A. Arntsen, President & CEO, Lupus & Allied Diseases Association and National Patient Advocate has been a passionate and diplomatic leader, patient advocate and warrior for the lupus, rheumatology and autoimmune communities for thirty-three years. In addition to leading LADA, she is an active member of numerous national coalitions and represents the patient perspective on several steering committees.
Known as a resilient activist who quickly coalesces others to support advocacy and research initiatives, she has provided public testimony before the FDA, Congress, and various federal and state agencies. She is strongly committed to ensuring the patient voice is included and recognized as an equal stakeholder in healthcare and policy arenas and across the research continuum and all Americans have access to appropriate, affordable and accessible medical treatment. Her background in insurance marketing, sales training, and medical billing, personal experiences, and interactions with patient and provider communities, have helped to shape her into one of the most powerful and unique advocates in the nation. Kathleen has received numerous awards and is a graduate of Colgate University.
“I Love Someone with Lupus, So…”
David Arntsen Educator, Administrator, and Advocate has been an educator for over thirty years with a focus on Career and Technical Education (CTE) at the secondary level. Being the spouse of a person with lupus and autoimmune conditions has been his second calling, supporting his wife Kathleen and her volunteer leadership role in the lupus community during their 29-year marriage. Dave remains an active partner in the Lupus and Allied Diseases Association, now serving as a member of the Board of Directors.
Solving the Mystery of Biological Treatments, Infusions, and Access
Brian Nyquist, MPH Executive Director, National Infusion Center Association has been a dedicated advocate for access to care for almost twenty years. Through NICA, Brian advocates for patient access to in-office infusion and injectable medications among the autoimmune disease community. In this role, Brian coordinates and oversees nationwide activities to support access to the in-office infusion delivery channel through advocacy, education, and resource development.
This event is for everyone! I encourage you to register at slfhawaii.org