I’m excited to share this new event! This is an awesome opportunity for everyone. I’d like to share the speakers background and the agenda with you.
The Power of Advocacy: Promoting Participation to Improve Care and Advance Research
Kathleen A. Arntsen, President & CEO, Lupus & Allied Diseases Association and National Patient Advocate has been a passionate and diplomatic leader, patient advocate and warrior for the lupus, rheumatology and autoimmune communities for thirty-three years. In addition to leading LADA, she is an active member of numerous national coalitions and represents the patient perspective on several steering committees.
Known as a resilient activist who quickly coalesces others to support advocacy and research initiatives, she has provided public testimony before the FDA, Congress, and various federal and state agencies. She is strongly committed to ensuring the patient voice is included and recognized as an equal stakeholder in healthcare and policy arenas and across the research continuum and all Americans have access to appropriate, affordable and accessible medical treatment. Her background in insurance marketing, sales training, and medical billing, personal experiences, and interactions with patient and provider communities, have helped to shape her into one of the most powerful and unique advocates in the nation. Kathleen has received numerous awards and is a graduate of Colgate University.
“I Love Someone with Lupus, So…”
David Arntsen Educator, Administrator, and Advocate has been an educator for over thirty years with a focus on Career and Technical Education (CTE) at the secondary level. His experience includes teaching Construction Trades, Principal at a Tech Center, and Director of CTE until his retirement last year. Being the spouse of a person with lupus and autoimmune conditions has been his second calling, supporting his wife Kathleen and her volunteer leadership role in the lupus community during their 29-year marriage. Dave remains an active partner in the Lupus and Allied Diseases Association, now serving as a member of the Board of Directors. His commitment to improving the quality of life for both those affected by lupus and allied diseases and high school students in CTE programs has been his life’s work and continues during his retirement from public service. Dave is now a consultant, adjunct professor, and advocate for Lupus and Career & Technical Education.
Solving the Mystery of Biological Treatments, Infusions, and Access
Brian Nyquist, MPH Executive Director, National Infusion Center Association has been a dedicated advocate for access to care for almost twenty years. Through NICA, Brian advocates for patient access to in-office infusion and injectable medications among the autoimmune disease community. In this role, Brian coordinates and oversees nationwide activities to support access to the in-office infusion delivery channel through advocacy, education, and resource development.
Known for his tenacious passion for helping others, Brian is committed to helping the nation’s sickest and most vulnerable citizens access the health care they desperately need to maximize quality of life and minimize the economic burden of disease.
Before joining NICA, Brian served as the Policy Analyst for the Texas House Committee on Public Health. Brian received his bachelor’s degree in Human Biology, with a focus on Genetics, from the University of Texas and his master’s degree in Public Health, with a focus in Health Policy and Management, from the Texas A&M Health Science Center School of Public Health. Brian was inducted into the Alpha Tau Chapter of the prestigious national Delta Omega Honor Society in Public Health and was honored in a Texas House Resolution for his dedicated work during the 84thLegislative Session that greatly contributed to the health and well-being of the people of Texas.
This event is for everyone! I encourage you to register at slfhawaii.org
We hope that you will attend to learn how empowerment leads to healthier lives!